New National Lung Cancer Patient Survey Launched

A UK survey to gather the experiences of lung cancer patients, including their families and carers, is launched today (18th May 2016) by the UK Lung Cancer Coalition (UKLCC).

Among its objectives, the research hopes to uncover what really matters to people living with lung cancer – and what more can be done to improve their experiences of treatment and care from the point of diagnosis – in order to increase their chance of survival and having a good quality of life. 

“Despite the UKLCC being on track to meet its founding ambition of doubling five-year survival rates between 2005 and 2015,1* lung cancer survival rates still compare poorly with other major cancer types,” says Mr Richard Steyn, Chair of the UKLCC, and Consultant Thoracic Surgeon and Associate Medical Director, Surgery, Heart of England NHS Foundation Trust.

“We want to further eliminate barriers to poor survival and quality of life in the UK.  Only by listening to people living with lung cancer can we hope to succeed.” 

Lung cancer remains the UK’s biggest cancer killer; it kills over 35,000 people each year, which is more than breast, bowel, bladder and uterine cancer combined.2  The disease accounts for nearly a quarter of all UK cancer deaths (22 per cent) and one in seven (13 per cent) of all new UK cancer cases.3  It is reported that four people die from lung cancer in the UK every hour (someone every 15 minutes).4 Despite, being labelled a ‘smoker’s disease’, one in eight people with lung cancer have never smoked.5

The survey will be completely confidential and can be accessed at:  Paper copies of the survey can also be downloaded from the website, or requested from selected lung cancer nurse specialists.

The survey closing date is 27 June 2016 and the results of the research will culminate in a UK-wide report later this year. 


Note to editors

*Predicted five-year survival rate of patients diagnosed in England in 2013 is now almost double (16 per cent) what it was ten years ago (9 per cent).1

The UKLCC is the UK’s largest multi-interest group in lung cancer and was established to help bring lung cancer out of the political, clinical and media shadow and improve one-year and five-year survival rates – which has been achieved.  Its membership includes leading lung cancer experts, senior NHS professionals, charities and healthcare companies.  Its charity members are the British Lung Foundation, Tenovus Cancer Care, Cancer Research UK, Macmillan Cancer Support, Marie Curie Cancer Care, Roy Castle Lung Cancer Foundation, and Cancer Black Care.

Please visit more information and details of all the UKLCC partners.


  1. Walters S, Benitez-Majano S, Muller P, et al., ‘Is England closing the international gap in cancer survival?’ British Journal of Cancer, 4 August 2015.  Available online via: bjc2015265a.pdf
  2. Cancer Research UK, ‘Cancer mortality for common cancers’, 2012.  Available online via:
  3. Cancer Research UK, ‘Lung cancer statistics’, 2013.  Available online via:
  4. Cancer Research UK, ‘Lung cancer mortality statistics’, 2012.  Available online via:
  5. NHS Choices, ‘About lung cancer’, accessed May 2016.  Available online via:

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